Cf Legal Information Hotline

Please visit www.cfscholarships.com/ to learn more about the different college scholarships, eligibility criteria and how to apply. Other information and resources are also available on this site. www.cfvoice.com – Educational website for all ages, must register, but contains age-specific information, activities, tips, stories, etc. Also has webcasts, videos, etc., also age-specific. For every recipe in a month`s supply of Zenpep, you can earn points for products and devices (for example, vitamins, nebulizers, supplements, etc.). You may also be eligible for the Zenpep Discount Coupon, which offers co-payment support of up to $50 on a Zenpep recipe. For more information, see www.zenpep.com/patient_cf.aspx. The CF Legal Information Line can answer your questions about health insurance coverage and learn about laws that protect the rights of people with CF. Email CFLegal@cff.org or call (800) 622-0385 www.parentingchildrenwithhealthissues.com – a website with informative articles on parenting for families with children with health problems. Also features a book called «Love and Logic» by Dr. Foster Kline. Living with a chronic illness brings many challenges for the whole family throughout their lives. Your CF team is here to help you address these challenges, whether medical, emotional, educational, financial or employment-related.

Our licensed clinical social worker is always available to talk to you, either at the clinic, by phone or by appointment. If we don`t have the resources you need here, we can help you connect. Below is a list of the most commonly used resources, but it is not an exhaustive list. Please contact your CF social worker for more information. www.cff.org – General Information, Advocacy, Patient Assistance, Research and Centre-Specific Information I have served on the CF Roundtable Board of Directors for 23 years. I write a column on legal issues and blog posts about changes to laws that protect people with CF. I am a lawyer and director of the CF Social Security Project, which helps people with CF apply for social security benefits. The Healthwell Foundation is a non-profit organization that can provide funding for certain CF treatments, equipment and supplements to CF patients who are financially eligible. Please ask the social worker at our center for more information or go to their website to apply directly. The pharmacy also helps patients get the maximum reimbursement from their health insurance companies and drug plans. Visit www.cfservicespharmacy.com or call (800) 541-4959.

In addition, the Compass Cystic Fibrosis Foundation is a personalized service that helps you solve the insurance, financial, legal and other problems you face. Visit www.cff.org/Assistance-Services/Insurance/Your-Insurance-Plan/Find-Resources-CF-Foundation-Compass/ or call 844-COMPASS (844-266-7277). This toll-free helpline, run by Beth Sufian (lawyer and adult with CF), provides free information on laws that protect the rights of people with CF. Patients, families, and healthcare providers can get information in many different areas, including: health insurance, Social Security disability, Medicare/Medicaid, employment issues, etc. Please visit www.cff.org/Assistance-Services/Insurance/Know-Your-Legal-Rights/ for more information or call (800) 622-0385. Provides co-payment support for Pulmozyme to patients with commercial insurance with co-payment or co-insurance for Pulmozyme over $30 per month. You can get financial support to supplement the expenses of your Pulmozyme for up to $4000 over a 12-month period. Those who have Medicare, Medicaid, and/or Tricare are not eligible for this program. Please visit www.pulmozyme.com/insurance/copay-card.jsp for more information or call (877) 794-8723 or (800) 690-3023.

To ensure you have the right experts on your team, no matter where you live, the CF Foundation supports and accredits a network of more than 110 CF care centres across the country. In your centre, doctors, nurses, social workers, dietitians, respiratory therapists and other service providers work closely with you to provide you with the best care and the latest treatments available. Since cystic fibrosis is a complex condition, whether a family member has just been diagnosed or you are living with CF, you probably have a lot of questions. On www.cff.org, you will find online sources for the latest information on cystic fibrosis treatment, care and research. You may find it: More information can be found on the nutrition page of the Adult CF Center. For more information, you can register on www.cff.org/email-opt-in/. Then you can receive our email newsletter, connections, regular email updates on current CF news and information on how to get involved. You can also fill out this form and send it to the address indicated below. www.cysticlife.org – This is a website where patients and families get together, talk about issues that affect them and get information.

This is a social networking site, not a medically supervised site. The CF Legal Information Line® is only a source of information. The helpline does not provide legal advice or representation to callers. All calls are confidential. If you would like a recommendation, contact CF Foundation Compass. This is a recreational grant for teens and young adults to encourage physical activity. You can get up to $500 to use over a one-year period. You can also choose to include a companion or recovery mentor in your activities. You will then receive up to $1000 that you can use over a period of 1 year. Please visit www.cflf.org/recreation-grants to learn more and/or to complete an application.

You can also call (802) 310-5983 for more information. The CF Pharmacy is part of the National Cystic Fibrosis Foundation. Medicines can be ordered and shipped directly to your home. The website provides a list of all their products and prices. This pharmacy also provides you with patient support resources, patient advocacy, and reimbursement support. At this time, CF Pharmacy does not accept NC Medicaid. Please visit www.cfservicespharmacy.com/ or call (800) 541-4959 for more information or to register. Compass is fully accredited by the Alliance of Information and Referral Systems (AIRS) – the only source of standards, accreditations and certifications for the community information and referral industry – providing efficient, world-class service to members of the CF community while adhering to the best and latest industry practices.

Please keep in mind that the IRS allows you to count medical expenses (7.5% of your gross income adjusted to your disaggregated tax deductions). You can visit www.irs.gov/taxtopics/tc502.html for more information on medical expenses and tax deductions. Talk to the person preparing your tax returns if you have specific questions or need additional help. For more information, see the Federal Poverty Guidelines. The Cystic Fibrosis Foundation funds the CF Legal® Information Line, a resource that provides free information on laws that protect your rights as a person with CF. Cf Legal Information Hotline experts can tell you about the following areas of law: Provides a range of services to North Carolina residents, including legal and financial services ®.